We spent some time going over what has been happening with Kate since the last month & a half. We discussed how Kate's seizures have changed and how each of the medicines have affected her. Kate had a few seizures in the office, which was ideal... they were able to see exactly what they look like.
We left with a plan to continue her vitamin treatment through this week, and then revisit Keppra. We will trial the Keppra while we're waiting for Oakland and Stanford to contact us regarding the diet. Depending on when that gets scheduled (and many other factors), we may try a new medicine called Depakote if the Keppra fails. It feels good to have a number of options available to us.
Kate is still having frequent seizures (15-20/day). She is a very different baby than she was on Topamax and Trileptal. She smiles frequently and is more alert. Now if we could just get her to fall asleep at night a bit easier... ;)
Kelly found a very useful (& free!) online tool for tracking Kate's seizures. It's a website that logs and graphs seizures and medications. It's easy to use (albeit a bit time consuming) and very helpful in objectively looking at the relationship between her medications and seizures. Dr. Sullivan and Janna were impressed and plan to recommend it to other patients/families!
The red bars are seizures/day and the colored lines are the various medication dosages.
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