Kate's heading back to UCSF for her G-tube procedure tomorrow. While we're a little nervous, we ultimately are looking forward to getting her nose tube out and a more permanent feeding tube put in.
Her procedure is scheduled for 1pm tomorrow, and my understanding is that it shouldn't take very long (~1 hour or so). She does have to be put under general anesthesia, so we get all the fun of not being able to feed her for a few hours before. I'm sure not looking forward to having her go limp in my arms again when they give her the gas... ugh.
She will be admitted to the hospital for approximately 2 nights, depending on how she does. It will be very interesting trying to advocate for her and her special dietary needs. It's critical that she doesn't get any extra carbohydrates, so as to keep her in good ketosis. Since her diet is pretty specialized and rare, not a lot of people know about it (including most nurses & many doctors). It's likely that I'll have to explain her diet many times!
Aside from the upcoming hospital stay, Kate's had a pretty good few weeks. She's gained a pound over the past month, which is awesome. She's a solid 13 pounds. Looks like we might have finally achieved her correct calorie requirements.
Kate had her 9 month well baby visit with her pediatrician last week. She said Kate looks good from her perspective. Kate also got her immunization shot.
That same day, we drove to SF to meet her new eye doctor. He's one of only a couple of pediatric opthamologists in the bay area and came very highly recommended. We've been looking forward to meeting with him for a couple of months now (he's popular and therefore difficult to schedule an appointment with). The good news is that Kate's eyes are healthy and normal, aside from the fact that she's VERY farsighted (+4.5 diopter in both eyes - difficult to focus close up). She will be getting glasses soon. Also, her eyes often don't track together (kind of a lazy eye issue, but both eyes do it), but the doctor thinks that the glasses have a good chance of fixing that as well. If the glasses don't fix the 'lazy eyes', then surgery might be an option. We'll cross that bridge if we need to!
Please keep her in your thoughts for the next couple of days. We're not expecting any excitement, but you never know!
17 years ago
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