Kate's seizure activity has increased to over 15 per day (and that's just what we notice). Kelly spoke to the Epilepsy nurse this morning and we're going to be adding another drug temporarily while we slowly increase the Topamax.
Her seizures are frequent but still minor. In order to minimize side effects, we're slowly increasing her Topamax, even though she's not at the dosage they want her at yet. Apparently, she's at just over half of the dose they think will be therapeutic. We'll be giving Kate a drug called Tranxene in the afternoon to hopefully reduce her seizure activity. Unfortunately, Tranxene has sedative effects. She should only be on this while we increase her Topamax.
Kate had a weight check with the Pediatrician this morning. Unfortunately, she was only at 11 pounds. Even with the potential difference in scale calibration, a gain of one ounce in a week is not great. Although the doctors are not overly concerned at this point, I'm starting to wonder.
Please keep her in your thoughts and prayers.
17 years ago
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