Home Again

We made it out of UCSF around 7:30 last night. Kate slept the whole way home. We have not noticed any seizures so far.

Kate is doing well on her two meds. She takes the Topamax very easily (it's only 0.5ml per dose) and must taste good to her. She still doesn't like the phenobarb, but her dose has been reduced to 4ml (down from 6ml when she was last on it). Kelly and I are trying to think of creative ways of giving it to her to minimize the trauma and potential throwing up.

We all slept pretty well last night. Kate woke up happy and was smiling at all of us (until medicine time!). So far, the medicines don't seem to be sedating her too much. We didn't get many smiles at the hospital. :(

Sadly, she has bruises all over her body from the many IV/blood draw attempts, and her scalp is red and irritated from all of the EEG leads. She doesn't seem to notice, and we sure hope it looks worse than it feels! She is quite a trooper for sure!

Your love and support is one of the big reasons Kate is doing well now. THANK YOU.