Kate has been sleeping all day so far. She still has quite a bit of medication in her body. She has not experienced a seizure since this morning.
The initial EEG results show that she is not only having 'clinical' seizures (ones that we can see), but also 'sub-clinical' seizures (ones that only show up on an EEG). Since about 11 last night, they recorded 17 seizures, most of which were 3-5 minutes long. Half of them were 'sub-clinical'. Yikes. Makes us wonder how long she's been having these. The docs feel (as do we) that these need to be controlled!
Kate was re-loaded on Phenobarb this morning. She also being kept on Ativan, a drug that is usually used to stop seizures as they are happening. So far, the combination has been working, but she still has levels of Keppra, Diastat, and Fosphenytoin anti-seizure drugs in her body from last night's adventures.
Both Ativan and Phenobarb are sedatives. The struggle will be (if this regime works) to give her the right doses, balancing seizure control with alertness and proper brain development.
They plan to keep her hooked up to the EEG for a while longer, since that is the only way to see the sub-clinical seizure activity. Gives me the 'warm and fuzzies' knowing that so far we likely only knew about half the problem.
The last excitement for today will be a spinal tap procedure to test for some other causes of seizures. Basically, they will draw fluid from around her spinal cord and analyze it. Thankfully, her current sedative state should keep her from consciously experiencing the procedure. We're told it looks worse than it actually is. Hmmmm.
Kelly and I are looking forward to an uneventful night. Hopefully Kate will sleep, or at least be happier tonight!
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